“Being told you have ALS is terrifying and liberating at the same time. It challenges you to fight, to push the norms and to attempt things most people would never imagine. It challenges you to be an innovator and to adapt to a much different life. It also brings you together with your friends, family and complete strangers. Blend it all together and what you have is something powerful, something that is unstoppable and that force is what’s needed to find a cure”